A global event for a growing community
For the first time, Italy is hosting the International Conference on DDX3X Syndrome, an event that will bring together families, specialists, researchers and therapists from all over the world.
Two days of exchange and collaboration to promote scientific research, share experiences, and build new connections between those who experience the DDX3X reality every day and those who work to understand and treat it.
Why it matters
The Conference has been organized to:
An event open to everyone
The conference will be accessible both in person and online via live streaming, with simultaneous translation in Italian and English to ensure participation for all.
There will be sessions dedicated to families, opportunities for exchange among European associations and scientific talks led by international experts.
Program
Day 1
- Participant registration
- Institutional greetings
- Live or remote participation of world-renowned speakers, specialists, and researchers on the syndrome
Day 2
- Morning: family time, tour of the Genoa Aquarium
- Afternoon: free individual consultations with experts. A poster session will take place where students and early-career scientists will present their work. Parents and scientists will have the opportunity to approach them, ask questions and engage in discussion. This will be a first for a DDX3X conference and a valuable opportunity for networking.
Qualified educators and staff will take care of DDX3X children throughout the conference.
Download the conference brochure
How to take part
Registration is required and can be completed via the online registration form indicated.
On the day of the conference, participants will be asked to present the confirmation email received after registration in order to access the event.
Participation fees
- Professionals (in-person): 25€
- Students (in-person): 15€
- Online participation (live streaming): 10€
Participation is free of charge for families and caregivers of individuals with DDX3X syndrome, for up to a maximum of two adults per family/caregiver group. –Update: all in-person spots reserved for families are already fully booked. Paid registrations are still open to attend via live streaming and to professionals, students and researchers.
Families and caregivers
Parents and caregivers will receive a questionnaire prior to the event.
This will allow us to better understand the characteristics and needs of their children, in order to offer a more inclusive, welcoming and appropriate conference experience for everyone,
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